概述
What is myasthenia gravis?
Myasthenia gravis (MG) is a rare neuromuscular condition, characterized by weakness and rapid fatigue under voluntary control, caused by deterioration of ordinary communication between nerves and muscles.1 The usual cause of MG is an acquired immunological abnormality, but some cases result from genetic abnormalities at the neuromuscular junction.2
How common is myasthenia gravis?
In the U.S., it is estimated that 20 in 100,000 have MG, approximately 36,000 to 60,000 cases. However, as myasthenia gravis often remains underdiagnosed, the prevalence is most likely higher.3
Questions regarding your myasthenia gravis therapy
You can reach the Accredo myasthenia gravis care team, anytime, day or night, seven days a week by phone or online.
24 小时客户服务中心
- 1MayoClinic.org Myasthenia Gravis
- 2Myasthenia.org What is MG?
- 3Myasthenia.org What is MG Quick Facts
症状
What are the symptoms of myasthenia gravis?
Symptoms may include: droopy eyelids and/ or double vision, difficulty speaking, difficulty breathing, problems chewing and swallowing or trouble performing everyday tasks and generalized muscle weakness.1
如何诊断？
A diagnosis of MG is confirmed via several methods, including the following:
- Acetylcholine receptor (AChR) antibody testing - Blood test to detect abnormal antibodies.1
- Anti-MuSK antibody testing - Blood test for MG patients who have tested negative for the acetylcholine antibody (AChR).1
- Ice Pack tests - Ice Pack tests are examinations performed by specialists to evaluate strength and recovery responses that could be consistent with an MG diagnosis.1
- Edrophonium test - Edrophonium is a drug that prevents the breakdown of acetylcholine, allowing the clinician to understand your muscle response and whether the results are consistent with an MG diagnosis.1
- Electromyography (EMG) - Repetitive nerve stimulations (RNS) applying electrical shocks are often used to gauge muscle response and action potential and whether results are consistent with an MG diagnosis.1
- Single-fiber electromyography (SFEMG) - Detects neuromuscular transmission defects by recording action potentials from individual muscle fibers using a small needle electrode.1
A clinician skilled in recognizing and distinguishing MG from other conditions is important in determining a proper diagnosis.
- 1Myasthenia.org Autoimmune MG and diagnostic Tests
药品
The following specialty medications are available at Accredo, a specialty pharmacy for myasthenia gravis.
节约护理费用
您还可获得经济援助协调服务，以承担您的部分药品费用，包括生产商和社区计划。Accredo 代表可以帮助您找到适合您的计划。
社区财政资源
财政指导
急救性质的特殊药品很昂贵。通过此视频，了解 Accredo 团队如何帮助个人找到可以负担他们救命药品费用的方式。
团队介绍
Accredo’s myasthenia gravis care team is dedicated to serving you and we understand the complexity of your condition. 我们的特殊培训临床医师每周 7 天、每天 24 小时为您提供服务，以回答您的任何问题。
我们为什么要这样做
Accredo 为慢性和复杂病症患者提供支持，并帮助他们过上最好的生活。请观看我们的视频，了解我们为什么为患者尽心尽力。