概述
什么是重症肌无力？
Myasthenia gravis (MG) is a rare neuromuscular condition, characterized by weakness and rapid fatigue under voluntary control, caused by deterioration of ordinary communication between nerves and muscles.1 The usual cause of MG is an acquired immunological abnormality, but some cases result from genetic abnormalities at the neuromuscular junction.2
重症肌无力有多常见？
在美国，估计 100,000 人中有 20 例，约有 36,000 到 60,000 例重症肌无力患者。However, as myasthenia gravis often remains underdiagnosed, the prevalence is most likely higher.3
有关重症肌无力治疗的问题
您可以随时通过电话或网络与 Accredo 的重症肌无力护理团队取得联系，该团队全天不间断提供服务。
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- 1MayoClinic.org Myasthenia Gravis
- 2Myasthenia.org What is MG?
- 3Myasthenia.org What is MG Quick Facts
症状
重症肌无力有哪些症状？
如何诊断？
MG 的诊断可通过多种方法确认，包括：
- Acetylcholine receptor (AChR) antibody testing - Blood test to detect abnormal antibodies.1
- 1
- Ice Pack tests - Ice Pack tests are examinations performed by specialists to evaluate strength and recovery responses that could be consistent with an MG diagnosis.1
- Edrophonium test - Edrophonium is a drug that prevents the breakdown of acetylcholine, allowing the clinician to understand your muscle response and whether the results are consistent with an MG diagnosis.1
- Electromyography (EMG) - Repetitive nerve stimulations (RNS) applying electrical shocks are often used to gauge muscle response and action potential and whether results are consistent with an MG diagnosis.1
- Single-fiber electromyography (SFEMG) - Detects neuromuscular transmission defects by recording action potentials from individual muscle fibers using a small needle electrode.1
临床医生能够熟练识别和区分 MG 与其他疾病对于确定正确的诊断非常重要。
药品
特殊药房 Accredo 提供以下治疗重症肌无力的特殊药品。
节约护理费用
您还可获得经济援助协调服务，以承担您的部分药品费用，包括生产商和社区计划。You may also use the copay assistance search for additional programs. Accredo 代表可以帮助您找到适合您的计划。
社区财政资源
财政指导
急救性质的特殊药品很昂贵。通过此视频，了解 Accredo 团队如何帮助个人找到可以负担他们救命药品费用的方式。
团队介绍
Accredo 的重症肌无力护理团队致力于为您服务，并且了解您病症的复杂性。我们的特殊培训临床医师每周 7 天、每天 24 小时为您提供服务，以回答您的任何问题。
我们为什么要这样做
Accredo 为慢性和复杂病症患者提供支持，并帮助他们过上最好的生活。请观看我们的视频，了解我们为什么为患者尽心尽力。