概述
What is sickle cell disease?
Sickle cell disease (SCD) is an inherited lifelong blood disorder that affects the shape of red blood cells. This disease affects people primarily of African and Hispanic descent.
Our red blood cells contain hemoglobin A, which carries oxygen to tissues in our body. In SCD, the hemoglobin found in red blood cells is different. It is called hemoglobin S. Red blood cells with hemoglobin S do not live as long as red blood cells with hemoglobin A. This means someone with hemoglobin S may not have enough red blood cells to bring oxygen and nutrients to the tissues in the body.
Hemoglobin S can cause the red blood cells to become crescent (sickle) shaped. When this happens, it becomes very difficult for red blood cells to make their way through small blood vessels and into tissues that need oxygen and nutrients. When tissues are unable to receive blood flow and nutrients, they can become damaged.
How common is sickle cell disease?
- SCD affects approximately 100,000 Americans
- SCD occurs in about 1 out of every 365 Black or African-American births
- SCD occurs in about 1 out of every 16,300 Hispanic-American births
Questions regarding sickle cell disease?
You can reach the Accredo sickle cell disease care team, anytime, day or night, seven days a week, by phone or online.
客户服务中心
症状
What are the symptoms of sickle cell disease?
Anemia (not enough healthy red blood cells)
- Fatigue; pale skin, lips or nailbeds
- Tiredness
- Feeling lightheaded
- Fast heartbeat
- Difficulty paying attention
- Swelling of the hands and feet that may be painful
- The skin or white of the eyes may look yellow
- Getting infections often
Symptoms of sickle cell crisis, when blood vessels to a part of the body are blocked by abnormally shaped red blood cells:
- Pain: May start suddenly; could feel dull, stabbing, throbbing, or sharp
- Shortness of breath and/or pain when breathing
- Extreme tiredness
- Headache or dizziness
- 幻觉
- Painful erections in males
- Difficulty moving parts of your body
- Yellowish skin color
How is sickle cell disease diagnosed?
Infants and children with SCD are at risk of infection and other health problems, so early diagnosis and treatment are important.
SCD can be diagnosed before a baby is born, while it is still inside the mother’s body. This can be done by testing some of the amniotic fluid around the baby or testing a tiny piece of the placenta.
After birth, a simple blood test can find SCD. This test may be done as part of newborn screening tests (in the U.S.) or anytime after the baby goes home from the hospital.
药品
镰状细胞贫血病
The following specialty medications are available at Accredo, a specialty pharmacy for sickle cell disease.
节约护理费用
您还可获得经济援助，以承担您的部分药品费用，包括生产商和社区计划。Accredo 专家可以帮助您找到适合您的计划。
社区财政资源
财政指导
急救性质的特殊药品很昂贵。通过此视频，了解 Accredo 团队如何帮助个人找到可以负担他们救命药品费用的方式。
查找支持
Sickle Cell Disease Organizations
There are many organizations that support research and advocacy for Sickle Cell Disease. 下面是其中部分组织。
支持组织
- Sickle Cell Disease Association of America, Inc | 800-421-8453
- American Sickle Cell Anemia Association | 216-229-8600
- American Society of Hematology | 202-776-0544
政府组织
团队介绍
Accredo’s sickle cell disease care team is dedicated to serving you and we understand the complexity of your condition. Our specialty trained clinicians are available 24 hours a day, seven days a week to answer any questions.
我们为什么要这样做
Accredo 为慢性和复杂病症患者提供支持，并帮助他们过上最好的生活。请观看我们的视频，了解我们为什么为患者尽心尽力。