概述
What is short bowel syndrome?
Short bowel syndrome is a complex disease that occurs due to the physical loss or the loss of function of a portion of the small and/or large intestine. Consequently, individuals with short bowel syndrome often have a reduced ability to absorb nutrients such as fats, carbohydrates (sugars), vitamins, minerals, trace elements and fluids (malabsorption).
However, in some cases, short bowel syndrome can lead to severe, debilitating and life-threatening complications. Short bowel syndrome is most commonly associated with the surgical removal (resection) of half or more of the small intestine. Such surgery is performed to treat intestinal diseases such as Crohn’s disease, injury or trauma to the small bowel, or congenital birth defects. The presence or absence of the large intestine (colon) also plays an important role in the genesis and/or treatment of the short bowel syndrome.
How common is short bowel syndrome?
Short bowel syndrome is rare and affects an estimated 10,000 to 20,000 people in the United States, including both children and adults.
Questions regarding your short bowel syndrome therapy?
You can reach the Accredo Short Bowel Syndrome care team anytime, day or night, seven days a week by phone or online.
24 小时客户服务中心
Call 1-844-492-4942
症状
What are the symptoms of short bowel syndrome?
Signs and symptoms of short bowel syndrome include:
- Diarrhea
- Bloating
- Excessive gas
- Foul-smelling stool
- 疲劳
- Poor growth
Loose, watery stool or diarrhea are the most common symptoms of short bowel syndrome in infants and children.
如何诊断？
A healthcare provider will diagnose short bowel syndrome in your child after a complete medical and family history, an exam and testing to learn more about their symptoms and what’s causing them.
Tests that diagnose short bowel syndrome include:
- Blood tests (complete blood count, blood chemistry, vitamin and mineral levels)
- A fecal fat test
- An X-ray, including barium tests
- A CT (computed tomography) scan
药品
The following specialty medications are available at Accredo, a specialty pharmacy for short bowel syndrome
节约护理费用
您还可获得经济援助，以承担您的部分药品费用，包括生产商和社区计划。You may also use the copay assistance search for additional programs. Accredo 专家可以帮助您找到适合您的计划。
- Shire One Path | 877-654-6148
- Patient Access Network Foundation (PANF) | 866-316-7263
- The Assistance Fund (TAT) | 855-940-3153
- NORD | 203-744-0100, option 1
财政指导
急救性质的特殊药品很昂贵。通过此视频，了解 Accredo 团队如何帮助个人找到可以负担他们救命药品费用的方式。
查找支持
There are many organizations that support research and advocacy for Short Bowel Syndrome. 下面是其中部分组织。
支持组织
团队介绍
Accredo’s Short Bowel Syndrome care team is dedicated to serving you and we understand the complexity of your condition. 我们的临床专家每周 7 天、每天 24 小时为您提供服务，以回答您的任何问题。
我们为什么要这样做
Accredo 为慢性和复杂病症患者提供支持，并帮助他们过上最好的生活。请观看我们的视频，了解我们为什么为患者尽心尽力。
24 小时客户服务中心
Call 1-844-492-4942