Christa George
Christa George
Product Management Director
Sep 24, 2024

Clinical excellence at Accredo® by Evernorth helps elevate rare disease care

Christa George
Christa George
Product Management Director
Sep 24, 2024
person in lab holding syringe

Meeting the unique challenges of rare disease therapies

The landscape of rare and gene therapies is rapidly evolving, demanding not only innovation in treatment but also excellence in clinical management. For patients with rare diseases, having access to specialized expertise is essential to ensure optimal therapeutic outcomes. Accredo’s Rare Disease Therapeutic Resource Center® (TRC) is recognized for delivering clinical excellence in rare disease care, setting a high standard for specialty pharmacies across the industry.

Setting the standard for rare disease care

Clinical excellence at Accredo goes beyond routine care—it’s built on a foundation of deep expertise. Each clinician within the Rare Disease TRC participates in condition-specific education that far exceeds industry standards. This commitment to ongoing education ensures that every clinician, from pharmacists to dietitians, is fully equipped to manage the complexities of rare disease therapies.

The Memphis-based Rare Disease TRC has achieved the prestigious URAC certification as a Rare Disease Pharmacy Center of Excellence. This certification, developed with the input of rare disease experts including the National Organization for Rare Disorders (NORD), highlights Accredo’s commitment to consistently meeting the unique needs of patients with rare conditions. It reflects a dedication to achieving the best possible patient outcomes through high-touch, patient-centric care, while maintaining strict compliance with complex regulatory and licensing requirements.

A multidisciplinary approach to care

Accredo’s Rare Disease TRC brings together a multidisciplinary team of clinicians, dietitians, nurses and social workers, all of whom are dedicated to addressing the full range of clinical and non-clinical challenges faced by patients with rare diseases. This holistic approach ensures that each patient’s care plan is tailored to their specific condition, from providing disease state education to managing side effects and ensuring long-term adherence.

Accredo’s unique structure allows for streamlined communication and collaboration between all stakeholders, including patients, prescribers and manufacturers. This synergy promotes enhanced operational efficiency, enabling manufacturers to navigate post-market approval with information and data that is actionable.

Vital coordination for rare disease patients

Coordination is also particularly vital for rare disease patients, who often require highly individualized care and prompt access to treatment. The Rare Disease TRC enhances speed to therapy by leveraging its clinical expertise and close coordination with manufacturers and prescribers.

Rare conditions such as spinal muscular atrophy (SMA), where early treatment can significantly impact a patient’s prognosis, Accredo’s ability to expedite the therapeutic process can make a life-changing difference. By fostering close collaboration with the patient’s care team, Accredo can support whole-person health, addressing not just clinical needs but also the social, behavioral and financial challenges that accompany living with a rare disease.

A proven model of clinical excellence

With its unique blend of clinical expertise, advanced training and a patient-first approach, Accredo’s Rare Disease TRC sets a benchmark for excellence in rare disease care. By continuously evolving and adapting to the needs of patients and the therapies they rely on, Accredo helps ensure that manufacturers can bring their therapies to market with confidence, knowing their patients are receiving the best possible care.

The Rare Disease TRC programs are customized to meet patients where they are in their care journey. Accredo does everything possible to make the specialty medication process as simple as possible. Learn more about how the Rare Disease TRC supports manufacturers in achieving clinical excellence for rare therapies by downloading the full white paper here.

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